Adolescent/Young Adult Sickle Cell Disease: A Population Health Approach

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DE-CTR ACCEL via YouTube:  Adolescent and young adult patients with sickle cell disease face unique challenges when managing their disease and accessing health care. These challenges are exacerbated by the transition from pediatric to adult health care systems. Often the fragmented and incomplete care they receive results in higher morbidity and mortality for these patients. One of the ways to address this is through a data driven population health approach. Examples of this type of management will be discussed as well as plans for research and implementation in the state of Delaware.

Dr. Stephanie Howe Guarino is a Pediatric Hematology/Oncology Fellow at Nemours/AI DuPont Hospital for Children. She completed her Internal Medicine-Pediatrics residency at CCHS/Nemours and is currently pursuing a Master of Science in Health Policy at Jefferson College of Population Health. Her research interests include Adolescent/Young Adult Oncology as well as AYA Sickle Cell Disease and health policy strategies to address health care disparities.

Date Video Created: 
Friday, January 12, 2018

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